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Tuesday, February 25, 2014

DO UT DES

This is what the ancient Romans would say to describe a way of acting towards others, “I give in order to receive, or be given back” and if I think to my about 15 years of marriage (full of tender love) I see that I had been always the “giver” to receive the love, care and attention back from my spouse Michele.
This way of saying describes also a philosophically correct way of behaving socially, in other words it’s usually better to be a “giver” than a “taker”, I can actually think of somebody who’s been living his entire life in a “taking from others” mode (B.), but I can very honestly say that in my marriage I’ve always and only been the giver, since the time when my spouse came first to Italy (from California) to pretty much live with me, when at that time we were not even married yet.
Therefore, we lived for some time in the North East of Italy where I had my job and eventually we got to live in my family’s town of Verona, after Brescia, Bologna, and Malcesine.
Then – like some kind of miracle – I was offered to move to the US headquarters of the company I was working for and that move too had few challenges, meaning that we first landed to Maryland (Elkton), then to Delaware (Newark) in a much better home and few years later – after the birth of both our two treasures – we moved to Lyme New Hampshire, where I used to have a very good working position as vice-president of an important division of the Italian ski company I was working for (4 years).
However even if working in a company where being athletically fit was important and part of the job was about being a proficient skier to be able to personally test the equipment being sold, my interests were always directed to the State of California for the main reasons that it’s both where my spouse was born and also very much because the weather is always a dream.
Especially when leaving Lyme at minus 10 degrees below zero with 5 feet of new snow everywhere, it seemed unreal to land in SFO with 75 degrees and under a very bright and warm sun, in addition there was my constant attempt to be in a higher managerial position – not only because it pays more – but also very much because I had attempted to earn the right to be a president (no longer just vice-p.) for several years already and for this very reason I even had lost my position in Newark because after having been the “one man” for the company/brand I had been working for in 4 years when I demanded the title truthfully aligned with what I had been doing 24/7 for 4 years, the owner could not accept the (mental) challenge of me being almost as important as him in this country, so I was dismissed in less than a week.
Given that my reason to be alive and have a family has always been to earn sufficient money to make my family very comfortable no matter where we are or what we do, the “do ut des” has been always my most important philosophy in life and none of those who either worked or knew me as friend could say that I’m not a giver, much less my wife and my family, who still today live off of my disability income.
What I had dreamt was that Michele could have learned from my way of living and being, was truly a dream, because she has shown to be just a very good and experienced taker, even if it’s true that she has assumed the responsibility to help grow and mature to adulthood our treasures, even if sometimes I fear that she’s “using” them as the reason to keep the standards of living at which I only could set her up to.
What I’m trying to say here is that I’m completely unable to figure out of a (any) reason why Michele not only has abandoned me (=divorce) but she also got herself in bed with a man (my former doctor B.) who’s only a taker, too much like Michele has always been.
This story makes me want to conclude by saying that there’s nothing worse than putting together 2 takers, if things can have any future, there must be a giver for any taker, and this is what Michele had to learn at her expenses (and mine! too).


Sunday, February 23, 2014

ABOUT MY PAIN – again

The love of my life (Michele) just told me and convinced me of the fact that my pain at my back –that’s been torturing for 8 years – isn’t due to AS (as I was thinking) but it’s the worse neuropathy, or a pain related to brain injury and therefore impossible to treat or reduce. I guess it’s going to take the discovery of how to repair an injured brain before I’ll be free from this pain that’s been making my existence really very bad because so painful.
I repeat what my former physical therapist used to tell me: ”your pain is what stops you from ever trying to walk by yourself, because you could walk independently already”.

Friday, February 21, 2014

I’M GOING TO WIN THIS ONE TOO

What many don’t know is that I was born the permanent winner in every fight or war I ever engaged in and while this isn’t at all easy nor pleasant in any way to fight, I’m absolutely sure and very confident that I’ll win it like any other before.
What’s getting in the way of making a clean and fair fight is my furious anger against the clear unfairness used to deal with me and my logic demands, but I’m very motivated to keep my fight constant and full of energy with determination is that while I’m fighting for my own welfare and freedom I’m fighting also for the future of my treasures, who – as I said here before already – are the very reason why I’m still alive here fighting for what’s right for us all.
I’m therefore somewhat puzzled by the behavior of those who know me well and who have known me for several years because it should be very clear for them that I have NEVER LOST ANY BATTLE in my life, so they should know very well how this one will end (no mater how long it will take).
In a way I’m not even too bothered to be forced to fight so much because it’s going to be something valuable for my treasures to see and later remember, I really see this as the one thing I’ve done to be remember with pride for.
It’s very true that this is the hardest and harshest fight I ever had to have, it’s also full of sadness, grief and sorrow mainly because I’m forced to fight it against my own sister and my still very beloved ex-wife/mother of our treasures.
As I’m writing this post I’m also dreaming that when both of them will read it, something “magic” will happen for them to give me back my dignity and personal freedom, even if not at all required by this warrior, who’s going to fully win very soon to conquer back again what’s been stolen from me in a time of weakness.
Like my dad used to say:” we’ll see what it will be of this battle and when the time will be right the victory will be celebrated by the righteous winner.

Any doubt who that will be?

Thursday, February 20, 2014

COULD BE WORSE

A friend of mine who used to be my caregiver – and abandoned me like all others - used to tell me that I should think of other people in situations much worse than mine and I always made fun of this because I can’t think nor imagine something worse than losing the very reason why I lived content for 42 full years with my created family and work across this world.
However lately I’ve started to think that some people have it much worse than me, like i.e.
  • A soldier in Iraq wounded at the spine and prisoner of the enemy without any access to medical care
  • Being in hell after death for eternity
  • Being diagnosed a brain cancer that will allow 6 more months to live with unspeakable pain.
  • Losing a child (both of whom I’m still living for) to brutal violence
These are just simple examples of things that would truly be much worse of my abandoned by all without a job condition, so like that person I now try to make myself appreciate my time on earth while I’m still alive, even if without my family and my job.

Besides all of this my strength of mind helps me keep all of my hopes that the way to make me return to be the successful man I was for 42+ years is soon going to become a reality and that, plus the therapy to get forever rid of my back pain will be like I finally “turned the corner” of my life to get back on my road to success and proud joy.
http://en.wikipedia.org/wiki/Things_Could_Be_Worse

BUT let me list here few links to what I believe being important web-articles

KIND OF SIMPLE

I know that I’m going to repeat many concepts I’ve described here before, but I truly cannot make me a reason why nobody still seems to grasp these concepts that seem to be very simple to me.
Therefore, I’m going to describe them in a step-by-step manner.
  1. once the brain is injured it get’s inflamed
  2. the inflammation lasts for entire decades (unlike what older text-books say)
  3. by chance (or mistake) someone in Florida injected an anti-inflammatory for rheumatic pain in a location in the neck (now protected by a US patent) that allowed this specific anti-inflammatory medication to enter the brain by passing through its blood-brain barrier simply because the molecular composition of this medication happens to be very similar to the enzymes that usually are transported inside the brain via the lymphatic pathways
  4. once inside the brain this medication simply does what it was developed for, or reduce the inflammation still present in the brain
  5. by reducing the inflammation the brain – naturally – acquires again its own plasticity
  6. Once the brain returns to be plastic it simply rewires itself around the injured areas – or dead neurons – therefore restoring the abilities lost by the injury (death of neurons).

If my readers here still cannot understand what I’m trying to clarify and I’ve been saying (in pieces) for too long here then I must accept that my own intelligence must be very superior to you all and I’m going to have to try to come to terms with the fact that all I’ve lost is forever gone at least until April 2015 when it will become clear that I’ve been always correct and my treasures (my only other priority) will still be very young.


Wednesday, February 19, 2014

I’VE BEEN WRONG!

I just realized today that I’ve been using the wrong name for what I’ve been begging ALL of my MD’s to be treated with, I’ve been asking for a perispinal Enbrel treatment, when I should have only used the words TNF-alpha, because as can be seen in the links below all the research ever made on the benefits of (Enbrel) in TBI has been done on its primary component, that’s simply the TNF-alpha, so I put here below just few links to websites that talk about real tests and experiments that – even if done on non-human subjects – show very well the benefits for the injured, or diseased brain after having “regulated” the amount of TNF-alpha present in the always inflamed brain after a TBI.Of course what is special about using Etanercept is that its molecular structure is similar to what can normally reach the brain, or high weight molecular structure, that makes Enbrel truly unique among the family of TNF-alphas.

So while I do apologize for my incorrectness I truly hope that someone will take the time to improve their knowledge by reading these sites and decide that making me better means give a normal life back to 4 people, not just myself, and act accordingly.
But then – of course there is always the matter of the money that must be paid to avoid the breach of the patent given to the inventor of this therapy and sadly given that none of my MD’s has any clue of how to do business they can’t think that a $dollar today can be thousands tomorrow, so they all remain stuck in their penniless mediocrity , it matters NOT that I’ve been giving to them dozens of official research papers on the subject, they remain to be dirty poor and ignorant!

I wonder who will be the first to make the move that they would be obliged to do by the Hippocratic Oath they ALL swore to.

Tuesday, February 18, 2014

MY BET

I’m pretty sure that my readers here know very well of the pain (#10) that’s been torturing me 24/7 for about 6 years and that I’ve been trying to figure out just by myself (since no doctor ever offered to help me understand with any test) why I have it and where it comes from.
So I now want to bet with anyone who’s bold enough to make a bet with me and my intelligence to figure things out just based on precise symptoms allocation, that what I’ve been suffering from is the Ankylosing Spondylitis (or AS) that I’m soon have confirmed by simple X-ray test and gotten rid of with a simple injection of Enbrel, that’s fully FDA approved for since its market entry.
Sadly I used to believe in the mother of my treasures in all she used to say about my medical history, mainly because she was present in the first times after my accident, but to say that 8 years ago I hadn’t developed it, is like telling to a 4 y/o that riding a bicycle isn’t something that can ever be learned to do.
So while I believe that I had none of it shortly after the accident, I’m fairly confident that doing some X-rays now will show that I definitely have developed is the Ankylosing Spondylitis that not only made my reasoning and thinking affected by its pain but that is what has been making it impossible for me to even try to walk by myself at least as a test.
So while I figured out all about my conservatorship imprisonment I see myself already make my equation (Walk=Work) real as I finally get rid of this painful condition. I put here below just one link to one of the dozens of sites where this conditions can be revealed by doing a simple self-test even without doing the dedicated X-ray test.

So once again, who wants to make a bet on this with me???

Monday, February 17, 2014

I FIGURED IT ALL OUT

I have had over the time since the accident 3 different neuropsy. who assessed me as unable to manage my money, and besides that this makes me more than furious, the last one was even listened like he was himself some kind of God from the Ventura court that assigned me to a full conservator who is a young girl who by age can be my daughter plus she’s in a family where the main business (and source of income) is to be conservators for disabled people who truly cannot manage money.
So after have boiled over my immense frustration for having been labeled unable to pay my bills and count to 3, I’m now somewhat confident to have figured out why I’ve been labeled more than once irresponsible to have any of my own money in my own hands.
This actually is based on my firm belief that the brain is simply another organ in the human body, much like a kidney or the liver and as such when it’s diseased or injured something must exist to make it better (heal it).
In fact when I had the assessments made by each and every one of those “specialists” I was toying every time with the idea to have found what could totally repair my brain (complete recovery/rehab) and that in a matter of few days (and much money) I would have shown up again completely as I used to be before my accident.
Sadly – as I wrote here earlier – this is truly the new frontier of human kind today, much like going to the moon used to be for several hundreds of years before we actually did.
Obviously I’m not resigned that this frontier will be passed in hundreds of years from now, I believe that being TBI truly the epidemic of this new millennium and given all the financial resources given to its support something (maybe stem cells?) is going to soon come out able to overcome this frontier too, and obviously I’m here ready to take all the benefits.

So dear you all prepare yourself to be ready to pay the steep price for having convicted me to conservatorship, because my anger with revenge are truly very painful, expensive and definite to all involved.

Friday, February 14, 2014

NEXT FRONTIER FOR MANKIND

Just like when we went on the moon, the understanding and ability to deal with the brain is the new/next frontier of human knowledge and I support and applaud to the research sponsored by our president for the BRAIN mapping that surely will give to men a new understanding not only of how our brain is connected to the body but also hopefully give new ideas on what to do when it
is damaged.
So many different people (or MD’s) around the world try to attempt different methods (hyperbaric oxygen, hormones anti-inflammatory Etanercept/Enbrel etc..) to help the brain repair and I’ve been first in line to have the chance to be at the forefront of any and all technologies.
I’ve been terribly determined and headstrong in wanting to “at least give to myself” the chance to get better, I can now say (except for Enbrel) that nothing exists that can help the human body recreate new neurons in place of the ones that die in the injury.
A good friend of mine (who tried Enbrel few years ago) is now fully convinced that only when the stem cell technology will become ready for the brain repair I’ll have what I’ve been looking for in the last 6 years, however I’m told that there is no way to ensure that what’s injected in the body goes for sure to the brain, I’m told that even by using the gravity (=hanging upside down for several minutes) there’s no way to make sure that the injected stem cells will go to the brain, they may stop somewhere else, like if there’s any skin cut or tooth infection, nobody can predict where they will go.
So to spend several tens of thousand of Z$$$ to have a gingivitis healed rather than the injured brain restored to its normal capacities is unthinkable. This is the reason why I actually think that any last neuropsychologist has no idea of what the assessed person can truly do and think, in fact that criminal said to the Ventura court that I couldn’t manage my money (that to me is like saying that I can’t count to 3) and I’m now living in a place I don’t like and am humiliated daily from people who are holding all of my money and pay my bills for me, given that I was assessed that I can’t do it.

If the karma won’t take care of this huge unfairness, I can only hope that their souls will be condemned to eternal solitude (or hell) because that’s what they deserve for having treated me like I’m stupid.


Saturday, February 08, 2014

CONSEQUENCES

While I’m wondering if my TBI  (or hemorrhagic stroke previously named incorrectly TBI) had any influence on the various assessments I had to go through, I’m somehow relieved of the medical consequences that my newly discovered condition (by myself only) might have on my inability to walk (that I’ve been saying for 8+ years that’s the unique disability that resulted from my accident).
The thing is that even if the brain is injured (like a stroke) anyway, there exist many more therapies and systems to help a victim to regain the walking ability than for a TBI.
I can’t begin to say how many websites come out from a simple Google search about post-stroke and walking.
While in my mind I cannot think of any logical reason why an injured brain with less living neurons would be any different depending on the way the neurons had died, I’m pretty happy and excited to see that the “guess-science’ has been working to improve the motor deficiencies of stroke victims for more time and with greater success.
I’m just going to put here below a couple of links on this matter, but if any of my readers is curious, I advise to simply make the search I just suggested to see that I’m not blowing any smoke in anyone’s eyes, I’m truly serious.

I hope to soon be able to say here that I re-acquired my walking ability and I’m both going to Italy with my treasures and getting back to work ( as I’ve been saying W=W or to Walk equals to Work).


Monday, February 03, 2014

MEANINGS

Let me try to explain better what I meant to say in my post of yesterday:
1.       my TBI is more like a stroke in its effects and main disability (inability to walk)
2.     the guess-science has been helping already for decades stroke victims to walk again (spasticity and neuronal death)
3.      my TBI is probably similar to an Hemorrhagic stroke
4.     My biggest sadness and frustration is that the mother of my treasures has been refusing to even think to ever live with me again.
5.     my second biggest frustration is that I’m not allowed by my current conservator to be assessed again by a doctor  who’s never seen me before, is probably very professional, has nothing to gain in assessing me as unable to manage my money but nobody seems to have any interest in lending any help to me to return to be free as any other individual in the “country of freedom”
Unless something changes for the better in my life going forward, I’m going to stop to use this blog to release of my frustrations.
Let’s all “hang in there” because my hopes (big and small) will only die with me.