I’VE BEEN WRONG!

I just realized today that I’ve been using the wrong name for what I’ve been begging ALL of my MD’s to be treated with, I’ve been asking for a perispinal Enbrel treatment, when I should have only used the words TNF-alpha, because as can be seen in the links below all the research ever made on the benefits of (Enbrel) in TBI has been done on its primary component, that’s simply the TNF-alpha, so I put here below just few links to websites that talk about real tests and experiments that – even if done on non-human subjects – show very well the benefits for the injured, or diseased brain after having “regulated” the amount of TNF-alpha present in the always inflamed brain after a TBI.Of course what is special about using Etanercept is that its molecular structure is similar to what can normally reach the brain, or high weight molecular structure, that makes Enbrel truly unique among the family of TNF-alphas.

So while I do apologize for my incorrectness I truly hope that someone will take the time to improve their knowledge by reading these sites and decide that making me better means give a normal life back to 4 people, not just myself, and act accordingly.

But then – of course there is always the matter of the money that must be paid to avoid the breach of the patent given to the inventor of this therapy and sadly given that none of my MD’s has any clue of how to do business they can’t think that a $dollar today can be thousands tomorrow, so they all remain stuck in their penniless mediocrity , it matters NOT that I’ve been giving to them dozens of official research papers on the subject, they remain to be dirty poor and ignorant!

I wonder who will be the first to make the move that they would be obliged to do by the Hippocratic Oath they ALL swore to.

1. http://www.ncbi.nlm.nih.gov/pubmed/19616519

2. http://www.pnas.org/content/early/2013/10/08/1316895110.full.pdf

3. http://www.sinobiological.com/TNF-alpha-Protein-Antibody-a-139.html?gclid=CI_mwfTN2LwCFU5efgodHE8Alg
4. GOOD  http://www.youtube.com/watch?v=Q0nZs4e63Ls&list=PLdoGNNtXDKYRVPgtMNIpp57HGOor5GzsM

5. http://www.youtube.com/watch?v=Pklg4hU2Hac
6. http://www.ncbi.nlm.nih.gov/pubmed/10743503
7. http://www.news-medical.net/news/20121101/Single-dose-of-etanercept-can-improve-chronic-neurological-dysfunction-from-stroke-or-TBI.aspx

MY BET

I’m pretty sure that my readers here know very well of the pain (#10) that’s been torturing me 24/7 for about 6 years and that I’ve been trying to figure out just by myself (since no doctor ever offered to help me understand with any test) why I have it and where it comes from.

So I now want to bet with anyone who’s bold enough to make a bet with me and my intelligence to figure things out just based on precise symptoms allocation, that what I’ve been suffering from is the Ankylosing Spondylitis (or AS) that I’m soon have confirmed by simple X-ray test and gotten rid of with a simple injection of Enbrel, that’s fully FDA approved for since its market entry.

Sadly I used to believe in the mother of my treasures in all she used to say about my medical history, mainly because she was present in the first times after my accident, but to say that 8 years ago I hadn’t developed it, is like telling to a 4 y/o that riding a bicycle isn’t something that can ever be learned to do.

So while I believe that I had none of it shortly after the accident, I’m fairly confident that doing some X-rays now will show that I definitely have developed is the Ankylosing Spondylitis that not only made my reasoning and thinking affected by its pain but that is what has been making it impossible for me to even try to walk by myself at least as a test.

So while I figured out all about my conservatorship imprisonment I see myself already make my equation (Walk=Work) real as I finally get rid of this painful condition. I put here below just one link to one of the dozens of sites where this conditions can be revealed by doing a simple self-test even without doing the dedicated X-ray test.

So once again, who wants to make a bet on this with me???

http://arthritis.about.com/library/quiz/blspondyquiz.htm

I FIGURED IT ALL OUT

I have had over the time since the accident 3 different neuropsy. who assessed me as unable to manage my money, and besides that this makes me more than furious, the last one was even listened like he was himself some kind of God from the Ventura court that assigned me to a full conservator who is a young girl who by age can be my daughter plus she’s in a family where the main business (and source of income) is to be conservators for disabled people who truly cannot manage money.

So after have boiled over my immense frustration for having been labeled unable to pay my bills and count to 3, I’m now somewhat confident to have figured out why I’ve been labeled more than once irresponsible to have any of my own money in my own hands.

This actually is based on my firm belief that the brain is simply another organ in the human body, much like a kidney or the liver and as such when it’s diseased or injured something must exist to make it better (heal it).

In fact when I had the assessments made by each and every one of those “specialists” I was toying every time with the idea to have found what could totally repair my brain (complete recovery/rehab) and that in a matter of few days (and much money) I would have shown up again completely as I used to be before my accident.

Sadly – as I wrote here earlier – this is truly the new frontier of human kind today, much like going to the moon used to be for several hundreds of years before we actually did.

Obviously I’m not resigned that this frontier will be passed in hundreds of years from now, I believe that being TBI truly the epidemic of this new millennium and given all the financial resources given to its support something (maybe stem cells?) is going to soon come out able to overcome this frontier too, and obviously I’m here ready to take all the benefits.

So dear you all prepare yourself to be ready to pay the steep price for having convicted me to conservatorship, because my anger with revenge are truly very painful, expensive and definite to all involved.

http://jannielynn.blogspot.com/

NEXT FRONTIER FOR MANKIND

Just like when we went on the moon, the understanding and ability to deal with the brain is the new/next frontier of human knowledge and I support and applaud to the research sponsored by our president for the BRAIN mapping that surely will give to men a new understanding not only of how our brain is connected to the body but also hopefully give new ideas on what to do when it

is damaged.

So many different people (or MD’s) around the world try to attempt different methods (hyperbaric oxygen, hormones anti-inflammatory Etanercept/Enbrel etc..) to help the brain repair and I’ve been first in line to have the chance to be at the forefront of any and all technologies.

I’ve been terribly determined and headstrong in wanting to “at least give to myself” the chance to get better, I can now say (except for Enbrel) that nothing exists that can help the human body recreate new neurons in place of the ones that die in the injury.

A good friend of mine (who tried Enbrel few years ago) is now fully convinced that only when the stem cell technology will become ready for the brain repair I’ll have what I’ve been looking for in the last 6 years, however I’m told that there is no way to ensure that what’s injected in the body goes for sure to the brain, I’m told that even by using the gravity (=hanging upside down for several minutes) there’s no way to make sure that the injected stem cells will go to the brain, they may stop somewhere else, like if there’s any skin cut or tooth infection, nobody can predict where they will go.

So to spend several tens of thousand of Z$$$ to have a gingivitis healed rather than the injured brain restored to its normal capacities is unthinkable. This is the reason why I actually think that any last neuropsychologist has no idea of what the assessed person can truly do and think, in fact that criminal said to the Ventura court that I couldn’t manage my money (that to me is like saying that I can’t count to 3) and I’m now living in a place I don’t like and am humiliated daily from people who are holding all of my money and pay my bills for me, given that I was assessed that I can’t do it.

If the karma won’t take care of this huge unfairness, I can only hope that their souls will be condemned to eternal solitude (or hell) because that’s what they deserve for having treated me like I’m stupid.

1. http://www.nih.gov/science/brain/

2. http://www.livescience.com/31984-brain-mapping-project-planning.html

3. http://blog.brainfacts.org/2013/04/the-science-behind-obamas-brain-project/#.Uv54_PldXto

CONSEQUENCES

While I’m wondering if my TBI  (or hemorrhagic stroke previously named incorrectly TBI) had any influence on the various assessments I had to go through, I’m somehow relieved of the medical consequences that my newly discovered condition (by myself only) might have on my inability to walk (that I’ve been saying for 8+ years that’s the unique disability that resulted from my accident).

The thing is that even if the brain is injured (like a stroke) anyway, there exist many more therapies and systems to help a victim to regain the walking ability than for a TBI.

I can’t begin to say how many websites come out from a simple Google search about post-stroke and walking.

While in my mind I cannot think of any logical reason why an injured brain with less living neurons would be any different depending on the way the neurons had died, I’m pretty happy and excited to see that the “guess-science’ has been working to improve the motor deficiencies of stroke victims for more time and with greater success.

I’m just going to put here below a couple of links on this matter, but if any of my readers is curious, I advise to simply make the search I just suggested to see that I’m not blowing any smoke in anyone’s eyes, I’m truly serious.

I hope to soon be able to say here that I re-acquired my walking ability and I’m both going to Italy with my treasures and getting back to work ( as I’ve been saying W=W or to Walk equals to Work).

1. http://neuroaidstroke.com/?gclid=CMDr8OmJvrwCFYhbfgodrxYAtQ

2. http://stroke.ahajournals.org/content/42/1/153.full.pdf
3. http://www.bcftbi.org/about-tbi/stroke.asp
4. https://stroke.ahajournals.org/content/41/10_suppl_1/S107.full
5. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2953718/
6. http://www.healthcommunities.com/stroke/types-hemorrhagic.shtml
7. http://www.csuchico.edu/~pmccaffrey/syllabi/SPPA342/342unit1.html

MEANINGS

Let me try to explain better what I meant to say in my post of yesterday:

1.       my TBI is more like a stroke in its effects and main disability (inability to walk)

2.     the guess-science has been helping already for decades stroke victims to walk again (spasticity and neuronal death)

3.      my TBI is probably similar to an Hemorrhagic stroke

4.     My biggest sadness and frustration is that the mother of my treasures has been refusing to even think to ever live with me again.

5.     my second biggest frustration is that I’m not allowed by my current conservator to be assessed again by a doctor  who’s never seen me before, is probably very professional, has nothing to gain in assessing me as unable to manage my money but nobody seems to have any interest in lending any help to me to return to be free as any other individual in the “country of freedom”

Unless something changes for the better in my life going forward, I’m going to stop to use this blog to release of my frustrations.

Let’s all “hang in there” because my hopes (big and small) will only die with me.

1. http://www.whyistheresomething.com/

2. http://en.wikipedia.org/wiki/Meaning_of_life
3. http://www.medtronic.com/patients/severe-spasticity/about/stroke/