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Saturday, December 14, 2013

AMAZING PARALLELL

It’s just came to my mind of devoted listener of all the recordings and movies ever made about Glenn Gould that he died few days after he had turned to be 50 y/o and while I do keep hoping that the God in which I believe (sorry Iacopo) is going to take me back again very soon (too much suffering), I do realize that I really haven’t done in my life anything even close to be remembered with the passion and sorrow that Glenn does command in all of his passionate listeners.


What’s exceptional and unique about what Glenn did first isn’t so much that he played Bach on the piano almost like he was recomposing the works of Bach, but mostly that he transferred his exceptional capacities to the act of recording and filming them all, in fact his recording of the Goldberg Variations has been a best seller for about 40 years after his death, so I see this like a perfect piano player with the additional gift to understand and know how to record his own magical interpretations of the works composed by Bach, several hundreds of years earlier.

Given that I had 2 children/treasures I think that I have an advantage over Glenn, but since my deal with the Almighty was about me keep on living to be with my 2 treasures whom I can only see on Sundays for few hours, this isn’t truly like maintaining my promise I made in exchange of keep living, and even if I’m about to move much closer to them, a very big obstacle remains between me and my treasures, named Michele, or their mother.

So in trying to imagine ways to be remembered for few decades after my death (only God knows when) I came up with few ideas that I’m going to list here below:

1. after the exceptional and unique full recovery from TBI return to work again in the footwear business

2. keep working on this blog to make it become like an internet site of destination for the many people who browse in the internet to find inspiration and answers to the many questions of life

3. Spend quality time with my treasures who’ll eventually spread my experience and knowledge around.







Monday, November 11, 2013

PATRIOTISM & CAPITALISM



You all saw my posts invoking the patriotism to move forward with the re-purposing of the Enbrel medication for something different than what was approved by the FDA for (rheumatic pain, AS), but a friend of mine told me by email that here in the USA capitalism is certainly a much stronger feeling than patriotism. My mistake is that I was born in Italy that’s been a country under the political control of the countries it borders with for several centuries (France, Spain and Germany); it wasn’t until the 18th century that with Garibaldi and G. Mazzini Italy became an independent State (Republic) with its own political system, a parliament and its own President.
I guess that given that this independence took place not too long ago, every Italian has a strong patriotic drive to take care of the Italian borders, arts history and language.
While here in the USA we celebrate the Independence Day on July 4th to remember what was done on that same day in 1776 our American history is very different from the Italian one, meaning that here in N. America we were never invaded physically in any territories, we had to break the dominating relationship away from the very distant UK monarchy (kings or Queens). Even today in Italy the Italian language is very influenced by the official language of the previous country that dominated the area, so in the South of Italy the “dialect” is very influenced by Spanish, given that the Bourbons of Spain ruled the South of Italy for very many years, while in Tuscany it was France that used to treat that region of Italy as an extension of its territories, so there even today the local slang (dialect) is still very influenced by the French language.
Every part of Italy used to be under the political and cultural influence dominion of the country geographically closest to it and I can add i.e. that Sicily used to be very influenced by Greece, there still exist there several Greek temples and other types of monuments, similar to those in the Athens’s Parthenon and Verona and its slang are influenced by the German language and culture, given its proximity to both Austria and Germany.
So the patriotic feeling is very ingrained in the attitude of every true Italian and this is very different from the patriotism of any American, even if the independence wars took place at about the same time. What’s even stronger in any real American of the USA is truly the “capitalism” or an economic system based on private ownership of property and business, with the goal of making the greatest possible profits for the owners.
So this same friend told me that for the already wealthy and profitable Amgen to ask to the FDA to approve the use of the Enbrel – a very strong TNF-alpha reducer that also reduces the immunological system of the person who receives it - it’s close to impossible to use several hundreds of millions of $$$ that a repurposing by FDA costs, to have Enbrel approved for neurological recovery needed after a TBI or to treat the Alzheimer.
This actually explains the reason why I’ve been emailing our current President Obama, the governor of the California State and even the few other companies in this business of the TNF-alpha, (i.e. Remicade, Humira, Cimzia, and Simponi) to go after the approval for TBI recovery, that’s still wide open and that can surely generate huge profits given the vastness of what I call the epidemic of this new millennium.
I’m however in great hopes that the Obama sponsored BRAIN project will realize that such anti-inflammatory agent is of strong help for TBI recovery.
I can only say:”let’s wait and see”.

How much longer am I going to have to wait to receive the Enbrel treatment given that it’s pretty obvious that it’s a treatment that can generate very much money to all who can provide it?


Monday, September 30, 2013

ICEBREAKERS

There must have been some initial large investment of money for these 2 doctors who I call “icebreakers” because they’ve started much earlier than the complete medical environment to treat using a TNF-alpha medication (Etanercept or Enbrel) to tre
at victims like me to have neurological improvements following either a stroke or TBI (= brain damage).
Normally whenever someone starts doing something new with success there’s a number of “followers” filing right behind the innovators or icebreakers, but this is the case that makes the complete exception, I can’t believe that it’s just a matter of the money needed for the initial investment, that can be made again by treating the first few patients, given that the basic ingredient is pretty inexpensive and not much of it, is really needed.
The sad result of this exception is that I’m going to have to wait for the “potential” future approval of the use of Enbrel for TBI by the FDA that only someone else – other than Amgen/Pfizer – will fund for the medical testing (trial) and approval.
These two “icebreakers” are geniuses for having been able to see and forecast the payoff of their investment or maybe they really took very seriously their Hippocratic Oath of dedication to the improvement of their patients’ conditions.
Again it’s very possible that my complete ignorance of the “guess-science” is making me see this case in a very twisted way, but I still I cannot figure out a reason why none of my doctors hasn’t at least accepted my begging to at least “try” it, especially given that all they keep doing all day long with all of their patients is to “try” to prescribe something that nobody ever knows if it’ll work for them/their conditions.

As I’ve been writing here for months I’m left only with the wish/hope that at next year’s worldwide neurological convention there will be agreement among all these scientists of guessing that using Enbrel can truly help the neurological recovery of an injured brain. Only 5 more months…..




Friday, September 20, 2013

MY STRENGTH OF CARACHTER

I’m told by many that what I say in writing here in my blog gives inspiration to “hang tough” in many situations on a daily basis because very often when things don’t seem to go in the right way many of my readers here think of me and of all the wrongs that keep happening to me that they decide that what they see as wrong to them isn’t too bad when compared to me and therefore they can soon overcome their sense of discomfort and by keeping on working and trying even harder they can overcome whatever it is that’s giving problems to them and make them feel like losers in what they are doing.

The priest who actually brings communion to me where I’m imprisoned every Sunday told me recently that what I write in my blog even inspires him and that maybe this is the mission in my life that God gave for me to fulfill.

While I can be glad to have a group of followers who take inspiration from my tragedies through this blog, I hope that it’s very clear to everyone that I never asked to receive such a challenge in my life, I actually think that I did have my share of real challenges in life already, that – given that I passed them all – I really never asked nor needed this tough/bad one.

I mean, I surely do appreciate what Fr. Blanco told me about my tragedy but I believe that he said so, simply to encourage me to support such misery that only someone blind can’t see.

What’s absolutely sure without any doubt however is that my God given strength of character will help me pass and forget all about this additional test for sure.

Wednesday, August 21, 2013

BETTER TO BE SAFE, THAN SORRY

I just did yet another neuropsychological evaluation with a doctor recommended by my court appointed defense attorney, this is a doctor of superlative experience and knowledge who works since several years at the Semel institute of UCLA, has been involved in the legislative process that concerns the testing of people with bran injury and the appointment of conservators.

Regardless of the fact that his analysis of me and mental/logic capacities turned out to be a personal success that is going to free me up of my temporary conservator, he said something commenting my previous evaluation that I can’t let go out of my mind, in fact he said that my previous neuropsychologist used as his guideline the “better be safe, than sorry” approach/attitude.

If this wasn’t used as sole term of reference by the judge deciding on my case and life, I wouldn’t have anything to say nor complain about, but since this “safe” assessment was used as the sole source to decide to be appointed a sorry conservator who could easily be my daughter, who to follow the law to the letter has made it impossible to me to even look at my money in my (now inexistent) bank and savings accounts, has cancelled my credit cards that I used to have for decades without a blemish, has cancelled my only way to spend my lonely days, called Netflix account and I fear that by stopping the payments to my life insurance policy whose only beneficiaries are my treasures.

In simple words the one “simple” assessment combined with a judge who clearly can’t see farther than his nose, both have destroyed my life as I had worked to build it for 50 years?

Any suggestion about who I should give my thanks to for this catastrophe is both very welcome and expected.


http://forum.wordreference.com/showthread.php?t=1652940

Tuesday, August 06, 2013

ABOUT MATH AND THE EXISTENCE OF GOD

I wrote already here on Feb 6th, 2013 about the neuropsychological attitude towards a God and its existence, but since I also recently advised to one of those Losers to learn about Pascal Wager.

I decided to make his mathematical approach to the demonstration to the existence of God more known – at least for those who read my blog here.

Blaise Pascal (1623-1662) was a 17th century French mathematician and scientist who, sadly, died at the age of 39 in a vehicle accident. He is considered to be the father of modern probability theory. He created the first calculating machine, invented the syringe, developed the hydraulic press, and refined the barometer for measuring atmospheric pressure.

I’m going to try here to explain his logic with very simple math:

1=we believe in God + 0= God doesn’t exist = 1, we had a good life anyway

1=we believe in God + 1= God is real = 2, we go to heaven after death

-1= we don’t believe in any God + 1=God is real = 0 or hell/eternal oblivion

-1= we don’t believe in any God + 0= God doesn’t exist = -1 = sure eternal hell

Since my brain is injured I’m not sure to have explained and simplified correctly the theory of Pascal, but you can look at the links posted here below to check for yourself.

Can also anyone explain to Michele that 1Carlo + 1Michele = 2Heaven, please?